News

Rare Disease Day 2018

Rare Disease Day takes place this year on 28th February 2018. 

Read more: Rare Disease Day 2018

Howard's Walk Raises £1,360

Howard Tyers walked the 26 mile route of Birmingham's famous Outer Circle on Sunday 5th November 2017 in aid of the Gorlin Syndrome Group.

Read more: Howard's Walk Raises £1,360

Sally Webster acknowledges achievement of LeJog Cyclists

A formal word of thanks from Sally Webster, Chair Gorlin Syndrome Group. 

Read more: Sally Webster acknowledges achievement of LeJog Cyclists

All Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions

News update courtesy of Genetics Alliance UK. 

Read more: All Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions

Dental Cone Beam CT -v- Convential CT Scans

Dental Cone Beam CT is an alternative to conventional CT scans for individuals with Gorlin Syndrome.

Read more: Dental Cone Beam CT -v- Convential CT Scans

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 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
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