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All Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions

News update courtesy of Genetics Alliance UK. 

Read more: All Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions

Sally Webster acknowledges achievement of LeJog Cyclists

A formal word of thanks from Sally Webster, Chair Gorlin Syndrome Group. 

Read more: Sally Webster acknowledges achievement of LeJog Cyclists

Successful completion of LeJog Cycle Ride

5 very happy but tired cyclists crossed the finish line at 4.00 pm on 17th Sept 2017. 

Read more: Successful completion of LeJog Cycle Ride

Dental Cone Beam CT -v- Convential CT Scans

Dental Cone Beam CT is an alternative to conventional CT scans for individuals with Gorlin Syndrome.

Read more: Dental Cone Beam CT -v- Convential CT Scans

Cyclists arrive in Scotland

Lands End to John O'Groats (LEJOG) arrive in Scotland.

Read more: Cyclists arrive in Scotland

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 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
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