Supporting Patients

Supporting Patients

Information and Support

The Gorlin Syndrome Group is able to offer information on most aspects of the condition.

We aim to support individuals affected by the condition and keep them updated with the latest developments or news in a variety of settings: 

Read more: Information and Support

Help with NHS Costs

If you are on a low income, you may be able to get help with NHS costs through the NHS Low Income (LIS).

Read more: Help with NHS Costs


The Gorlin Syndrome Group and Freedom Insurance link up in 'Partnership Scheme'

Read more: Insurance

Benefit Changes - commencing April 2013

Major reforms to Welfare Benefits system in the UK. 

Read more: Benefit Changes - commencing April 2013

 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
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