Research and Surveys

Gorlin Syndrome Survey closed 3rd May 2013

The recent Gorlin syndrome survey closed on the 3rd Maay 2013.


On behalf all at the Gorlin Syndrome Group Executive Committee we express our sincere thanks to all who took the time to participate and complete the survey.  We are anticipating the results of the survey will be published in June or July and these will be made available via the website.

Once again, thank you so much to all for your input.




 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
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