Research and Surveys
Research & Surveys
The Gorlin Syndrome Group UK, is calling for people with Gorlin syndrome across the UK to complete a short 15-20 minute survey.
Rare Disease UK offer thanks for helping them gather so many patients' and families' views and experiences.
Study Evaluating the Efficacy and Safety of GDC-0449 in Patients with Advanced Basal Cell Carinoma extended to UK
A Study Evaluating the Efficacy and Safety of GDC-0449 (Hedgehog Pathway Inhibitor) in Patients With Advanced Basal Cell Carcinoma has now been extended to the Royal Marsden NHS Foundation Trust, London, UK.
The recent Gorlin syndrome survey closed on the 3rd Maay 2013.
The Gorlin Syndrome Group is committed to the promotion of research into the causes, effects, treatment and management of Gorlin Syndrome and the dissemination of the useful results.
Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello. We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support.
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361