Research and Surveys

Research & Surveys

Report launched on impact of rare diseases

Rare Disease UK offer thanks for helping them gather so many patients' and families' views and experiences. 

Read more: Report launched on impact of rare diseases

Research Projects

The Gorlin Syndrome Group is committed to the promotion of research into the causes, effects, treatment and management of Gorlin Syndrome and the dissemination of the useful results.

Read more: Research Projects

Results of survey to be presented at EADO Conference

Results of the Gorlin syndrome survey to be presented at the European Association of Dermato-oncology (EADO) Conference.

Read more: Results of survey to be presented at EADO Conference

UK DCTN

The UK Dermatology Trials Network is open to anyone (medical staff and patients/carers) with an interest in dermatology research.The network was established in 2002 by Professor Hywel Williams of the University of Nottingham.

Read more: UK DCTN


 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
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