Research and Surveys
Research & Surveys
Rare Disease UK offer thanks for helping them gather so many patients' and families' views and experiences.
The Gorlin Syndrome Group is committed to the promotion of research into the causes, effects, treatment and management of Gorlin Syndrome and the dissemination of the useful results.
Results of the Gorlin syndrome survey to be presented at the European Association of Dermato-oncology (EADO) Conference.
The UK Dermatology Trials Network is open to anyone (medical staff and patients/carers) with an interest in dermatology research.The network was established in 2002 by Professor Hywel Williams of the University of Nottingham.
Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello. We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support.
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361