Research and Surveys
Research & Surveys
The British Skin Foundation is currently supporting research at Cardiff University.
A number of press releases following release of patient stories in the UK. Links below.
Results of Gorlin syndrome patient survey released on 18th July 2013 at the European Association of Dermato Oncology (EADO) Congress in Hamburg.
Psychological impact of multiple cancer surgeries highlighted by new patient group research.
Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello. We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support.
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361