Research and Surveys

Research & Surveys

Gorlin syndrome survey - closing date 3rd May 2013

The Gorlin Syndrome Group UK, is calling for people with Gorlin syndrome across the UK to complete a short 15-20 minute survey.  

Read more: Gorlin syndrome survey - closing date 3rd May 2013

Report launched on impacts of rare diseases

Rare Disease UK offer thanks for helping them gather so many patients' and families' views and experiences. 

Read more: Report launched on impacts of rare diseases

Study Evaluating the Efficacy and Safety of GDC-0449 in Patients with Advanced Basal Cell Carinoma extended to UK

A Study Evaluating the Efficacy and Safety of GDC-0449 (Hedgehog Pathway Inhibitor) in Patients With Advanced Basal Cell Carcinoma has now been extended to the Royal Marsden NHS Foundation Trust, London, UK.

Read more: Study Evaluating the Efficacy and Safety of GDC-0449 in Patients with Advanced Basal Cell...

Gorlin Syndrome Survey closed 3rd May 2013

The recent Gorlin syndrome survey closed on the 3rd Maay 2013.

Read more: Gorlin Syndrome Survey closed 3rd May 2013

Research Projects

The Gorlin Syndrome Group is committed to the promotion of research into the causes, effects, treatment and management of Gorlin Syndrome and the dissemination of the useful results.

Read more: Research Projects

More Articles...

  1. UK DCTN

 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
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