News

News

BAD launch Skin Support Website

The British Association of Dermatologists is currently in the process of evaluating its Skin Support website, which aims to provide psychological support to people with skin conditions.

Read more: BAD launch Skin Support Website

Still time to complete Patient Survey

Not completed the survey yet?

Read more: Still time to complete Patient Survey

Lands End to John O Groats Bike Ride

David Rowley cycling 1000 miles in 9 days in support of the Gorlin Syndrome Group. 

Read more: Lands End to John O Groats Bike Ride

Melanoma Research

Israeli researchers have discovered how skin cancer spreads and found ways to stop the metastatic process. 

Read more: Melanoma Research

Gorlin Syndrome Study recruiting in UK

Manchester Royal Infirmary and The Royal London Hospital still have capacity to recruit individuals to participate in this study. 

Read more: Gorlin Syndrome Study recruiting in UK

Patient Event Saturday, 11th June 2016

We had hoped to release the programme for the event this weekend.

Read more: Patient Event Saturday, 11th June 2016

Things People with Rare Diseases Wish others Understood

How often do individuals with rare condition hear these words?

Read more: Things People with Rare Diseases Wish others Understood

Closing Date for Patient Conference & AGM

Not long now until 11th June 2016 and the long awaited patient conference and AGM.

Read more: Closing Date for Patient Conference & AGM

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 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
 
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