Things People with Rare Diseases Wish others Understood

Last Updated on Friday, 27 May 2016 18:54
Published on Friday, 27 May 2016 18:43
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How often do individuals with rare condition hear these words?


It must 'ring a bell' with so many people affected by rare conditions. Gorlin Syndrome is no exception and we are sure the statements included in the article will be familiar to all affected by rare conditions. Thank you to Genetic Alliance Uk for sharing this article.