Patient Conference & AGM 2016

Bookings now being accepted for Patient Conference. 

The event will take place at the Clayton Hotel Manchester Airport on Saturday, 11th June 2016. The day will commence at 9.30 am with refreshments for a 10.00 am start and run through to 4.00 pm. All refreshments and a three course buffet lunch will be provided for all attendees. The hotel is located close to flight terminals and Manchester Airport Railway Station. The hotel offers a 24 hours shuttle bus for the convenience of those arriving by plane or train and parking is available on the hotel car park free of charge to attendees. 

Speakers this year will cover topics to include the condition, genetics, treatments, new advances in treatments to name a few. Medical Advisers will factor time into their slots to enable attendees to ask questions about any aspect of the condition. 

A fully supervised creche operated by national organisation Safehands will cater for children up to the age of 14 years and of mixed abilities and offers a wide range of activities throughout the day. 

The conference is heavily subsidised thanks to sponsors and a grant application but we ask for a non-refundable payment of £20.00 per adult to secure a place. To book your place/s kindly complete the booking form in full. It can be completed electronically and returned via email to This email address is being protected from spambots. You need JavaScript enabled to view it. and payment can be made via the donate button on right hand side of the website. If returning by post kindly include a cheque payable to Gorlin Syndrome Group.

Anyone wishing to book accommodation at the hotel for Friday 10th and/or Saturday 11th should contact the hotel direct; further details about types of rooms and prices are included on the booking form. 

A limited amount of funding is available to support attendance, i.e. contribution to cost of overnight stay or travel subject to demand. If you would like to take advantage of this then please do indicate on the booking form. 

The event offers the opportunity to learn more about the condition, hear all the latest news and to meet others affected by the condition.  A short time is also set aside in the afternoon for the purpose of complying with our Charitable Constitution as governed by the Charities Commission.

We look forward to welcoming you the event. 


 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
Gorlin Syndrome community on HealthUnlocked
website security