Rare Disease UK Publish Progress Report

Last Updated on Saturday, 05 March 2016 16:07
Published on Saturday, 05 March 2016 16:06
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UK Rare Disease Forum (the group charged with monitoring the implementation of the UK Strategy for Rare Diseases) publishes first progress report. 


The report was published on the 29th February 2016 to coincide with International Rare Disease Day.  It acknowledges the work that has been done so far whilst recognising that much remains to be done to meet the needs of individuals affected by rare condition. 

The report can be accessed at the Rare Disease UK website