News

News

Vismodegib named Drug Discovery of the Year by the British Pharmacological Society

Roche announced that the first in class Hedgehog pathway inhibitor vismodegib, was named Drug Discovery of the Year by the British Pharmacological Society.

Read more: Vismodegib named Drug Discovery of the Year by the British Pharmacological Society

Manchester Marathon in Support of Gorlin Syndrome Group

Claire Pennyfather, neice of co-founder Jim Costello (now deceased) and Margaret Costello is running the Manchester Marathon in support of the Gorlin Syndrome Group.

Read more: Manchester Marathon in Support of Gorlin Syndrome Group

"Efficacy and Safety of Vismodegib" Report Released

The New England Journal of Medicine yesterday released a report on the "Efficacy and Safety of Vismodegib in advanced Basal Cell Carcinoma".

Read more: "Efficacy and Safety of Vismodegib" Report Released

Austrailian Website Launch

New Gorlin Syndrome Support Group website launched in Australia.

Read more: Austrailian Website Launch

Patients Know Best

Patients Know Best is a website that allows patients to have full access to their medical records while maintaining the records confidentiality. It also allows patients to interact with their doctors through the site. This not only cuts down on the amount of time needed to visit doctors but also allows all specialists involved access to all the patients records.

Read more: Patients Know Best

Raise money for GORLIN SYNDROME GROUP

Here's a new easy way to raise money for GORLIN SYNDROME GROUP that does not involve parting with extra cash.

Read more: Raise money for GORLIN SYNDROME GROUP

Considering PDT Treatment?

If you are considering Photodynamic Therapy as a treatment for basal cell carcinomas you may be interested in reading all about it.

Read more: Considering PDT Treatment?

Trials in US - Early signs are encouraging!

The American support group, BCCNS Life Support Network report recent radical changes in the treatment opportunities available to people with Gorlin Sydrome.

Read more: Trials in US - Early signs are encouraging!


 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
 
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