News

News

Still time to complete Patient Survey

Not completed the survey yet?

Read more: Still time to complete Patient Survey

Lands End to John O Groats Bike Ride

David Rowley cycling 1000 miles in 9 days in support of the Gorlin Syndrome Group. 

Read more: Lands End to John O Groats Bike Ride

Melanoma Research

Israeli researchers have discovered how skin cancer spreads and found ways to stop the metastatic process. 

Read more: Melanoma Research

Gorlin Syndrome Study recruiting in UK

Manchester Royal Infirmary and The Royal London Hospital still have capacity to recruit individuals to participate in this study. 

Read more: Gorlin Syndrome Study recruiting in UK

Patient Event Saturday, 11th June 2016

We had hoped to release the programme for the event this weekend.

Read more: Patient Event Saturday, 11th June 2016

Things People with Rare Diseases Wish others Understood

How often do individuals with rare condition hear these words?

Read more: Things People with Rare Diseases Wish others Understood

Closing Date for Patient Conference & AGM

Not long now until 11th June 2016 and the long awaited patient conference and AGM.

Read more: Closing Date for Patient Conference & AGM

Patient Conference & AGM 2016

Bookings now being accepted for Patient Conference. 

Read more: Patient Conference & AGM 2016


 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
 
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