Manchester Royal Infirmary and The Royal London Hospital still have capacity to recruit individuals to participate in this study.
How often do individuals with rare condition hear these words?
Not long now until 11th June 2016 and the long awaited patient conference and AGM.
UV app has been created by the British Association of Dermatologists (BAD) in collaboration with the Met Office.
UK Rare Disease Forum (the group charged with monitoring the implementation of the UK Strategy for Rare Diseases) publishes first progress report.
BBC report that a new drug for advanced skin cancer should be made available on the NHS in England, experts recommend.
Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello. We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support.
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361