News

Early Start for the Lands End to John O'Groats Cyclists

Today is the day! 

Read more: Early Start for the Lands End to John O'Groats Cyclists

So many questions about Vismodegib

The Gorlin Syndrome Group get so many questions about the drug CVismodegib, it's benefits and side effects. 

Read more: So many questions about Vismodegib

BAD launch Skin Support Website

The British Association of Dermatologists is currently in the process of evaluating its Skin Support website, which aims to provide psychological support to people with skin conditions.

Read more: BAD launch Skin Support Website

Still time to complete Patient Survey

Not completed the survey yet?

Read more: Still time to complete Patient Survey

Lands End to John O Groats Bike Ride

David Rowley cycling 1000 miles in 9 days in support of the Gorlin Syndrome Group. 

Read more: Lands End to John O Groats Bike Ride

Melanoma Research

Israeli researchers have discovered how skin cancer spreads and found ways to stop the metastatic process. 

Read more: Melanoma Research

Gorlin Syndrome Study recruiting in UK

Manchester Royal Infirmary and The Royal London Hospital still have capacity to recruit individuals to participate in this study. 

Read more: Gorlin Syndrome Study recruiting in UK

Patient Event Saturday, 11th June 2016

We had hoped to release the programme for the event this weekend.

Read more: Patient Event Saturday, 11th June 2016

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 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
 
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