Frequently Asked Questions


I'm worried my children may inherit Gorlin Syndrome. What should I do?

There is a 50:50 chance of children inheriting Gorlin Syndrome. It is suggested that an appointment is obtained with a Geneticist who will be in a position to confirm the condition in family members. The family GP can arrange the appointment.

I would like children but I have Gorlin Syndrome. What should I do?

There is a 50% risk that a child will inherit the condition. It is important to point out that you do have choices.  Speak to your Doctor or Geneticist, they will be in a position to offer information and advice about the condition, as well as offering guidance on pregnancy and child birth.

Does the size of the head mean problems during childbirth?

In pregnancy and childbirth 72% - 80% of women needed forceps or caesarean section during childbirth.

 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
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