Frequently Asked Questions

Is there a rule on the frequency of ultrasound scans for fibromas/cysts?

There is at present no protocol for regular screening for ovarian fibromas/cysts. If the patient requested screening it would be advised that healthcare professionals with experience of Gorlin Syndrome did it.

 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
 
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