Frequently Asked Questions

If a fibroma is found does it normally have to be removed?

Only if it is causing problems, i.e. sometimes when the ovary twists round the pedicle, it can stangulate the blood supply. Usually the fibroma, not the ovary is removed.  Sometimes cysts develop on the ovaries during the menstrual cycle. These can be left and monitored unless they have an unusual appearance, in which case these too can be removed but only on the advice of healthcare professionals with experience of Gorlin Syndrome.

 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
Gorlin Syndrome community on HealthUnlocked
website security