Frequently Asked Questions
No hard and fast rule. In some people they do slow down with age, in others there is little difference.
The procedure is a form of surgical excision that has been modified with mapping the margins of the tissue specimen to determine whether tumour remains. This technique spares normal tissue because of the microscopic control involved. The pain, post-operative result, follow up care and healing are similar as with standard surgical excisions. The overall chance of a cure with Moh's surgery is 99%.
In some patients with Gorlin Syndrome radiotherapy may lead to rapid development of new basal cell carcinomas and therefore should be used under special / exceptional circumstances.
There is a 50:50 chance of children inheriting Gorlin Syndrome. It is suggested that an appointment is obtained with a Geneticist who will be in a position to confirm the condition in family members. The family GP can arrange the appointment.
Normally, once annually unless advised otherwise by the oral consultant involved.
Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello. We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support.
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361