News

Launch of UK Strategy for Rare Diseases

We are grateful to Gentics Alliance UK for their communication below alerting us to the launch of the long awaited UK Strategy for Rare Diseases.

Read more: Launch of UK Strategy for Rare Diseases

Gorlin Syndrome Survey - Summary Overview

In August 2013, the Gorlin Syndrome Group conducted a media outreach activity to highlight its recent survey.

Read more: Gorlin Syndrome Survey - Summary Overview

Gorlin Syndrome again in the news

Gorlin Syndrome featured in Mancunian Matters.

Read more: Gorlin Syndrome again in the news

UK Strategy for Rare Diseases

Rare Disease UK (RDUK) has been campaigning for a UK Strategy for rare diseases.

Read more: UK Strategy for Rare Diseases

New Treament for Advanced Skin Cancer Available in UK

New oral treatment Erivedge (vismodegib) now authorised for UK use.

Read more: New Treament for Advanced Skin Cancer Available in UK

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 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
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