News

Alert from MHRA and British Association of Dermatologists

The Medicines and Healthcare products Regulatory Agency (MHRA) and the British Association of Dermatologists are today warning people not to purchase or use Etin Skin Solution, a lotion claiming to treat skin conditions and known to have been supplied from various Asian and African beauty shops.

Read more: Alert from MHRA and British Association of Dermatologists

European Commission approve Odomzo (formerly LDE225)

Novartis announce approval of Odomzo (formerly LDE225).

Read more: European Commission approve Odomzo (formerly LDE225)

Genetic Alliance UK plan for All Parliamentary Group for Rare Conditions

Genetic Alliance UK are planning to set up an All Party Parliamentary Group (APPG) on rare, genetic and undiagnosed conditions.

Read more: Genetic Alliance UK plan for All Parliamentary Group for Rare Conditions

Support our work

As a charitable organisation we are reliant on donations to ensure our work continues.

Read more: Support our work

Vitamin D

It is recommended that everyone should take Vitamin D supplements to counter the lack of sunshine in the UK, government experts are proposing. 

Read more: Vitamin D

Subcategories


 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
 
Checkout
Gorlin Syndrome community on HealthUnlocked
website security