News

Lands End to John O Groats Bike Ride

David Rowley cycling 1000 miles in 9 days in support of the Gorlin Syndrome Group. 

Read more: Lands End to John O Groats Bike Ride

Melanoma Research

Israeli researchers have discovered how skin cancer spreads and found ways to stop the metastatic process. 

Read more: Melanoma Research

Patient Event Saturday, 11th June 2016

We had hoped to release the programme for the event this weekend.

Read more: Patient Event Saturday, 11th June 2016

Gorlin Syndrome Study recruiting in UK

Manchester Royal Infirmary and The Royal London Hospital still have capacity to recruit individuals to participate in this study. 

Read more: Gorlin Syndrome Study recruiting in UK

Things People with Rare Diseases Wish others Understood

How often do individuals with rare condition hear these words?

Read more: Things People with Rare Diseases Wish others Understood

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 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
 
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