Gorlin Syndrome Research Study

A new Gorlin Syndrome Study is running in the UK at Manchester Royal Infirmary and The Royal London Hospital. 

The research study is testing a new medication called Patidegib Gel in individuals who have Gorlin Syndrome, also known as nevoid basal cell carcinoma or basal cell nevus syndrome (BCNS), The aim of the study is to find out if the new gel applied to the skin can reduce the size of tumours, prevent growth of new tumours, and therefore reduce the need for tumour removal surgery.

If you have Gorlin Syndrome and are aged between 18 and 85, you may be eligible to participate in this study. 

Further detail is included on the attached information leaflet.  Fuller details can be accessed at Clinical Trials website.

If after reading the information leaflet you feel that you still need to learn more about the Gorlin Syndrome Study and whether you may be eligible to participate, please use the contact details to speak with a member of the research team. 

 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
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