Gorlin Syndrome Group

This section of the website contains information about the Gorlin Syndrome Group.

About Us

The Gorlin Syndrome Group is a support network offering guidance and information to patients, their families and carers whose lives are affected by Gorlin Syndrome (also known as Nevoid Basal Cell Carcinoma Syndrome).  

Read more: About Us

Our History

The first meeting of the group took place in Manchester in 1992, with five patients and their families in attendance.


All members of the Board of Trustees carry out their duties on a voluntary basis and in accordance with the Gorlin Syndrome Group Constitution. 

Read more: Trustees

Medical Advisors

The Gorlin Syndrome Group is grateful to the team of medical advisors who give up their time freely to ensure the relevance and accuracy of website content. We are extremely priveleged and honoured to have such an experienced medical team on board.

Read more: Medical Advisors


We are grateful to each of our Patrons for their contribution and support of the Gorlin Syndrome Group.  Without their input much of the information within the website would not have been possible.  

Read more: Patrons

Jim Costello - Founder

The Gorlin Syndrome Group was formed in the UK in 1992 by Jim Costello (now deceased), with the assistance from the Clinical Genetics Departments at St Mary's Hospital, Manchester and Birmingham Women's Hospital, Professor G R Evans and Professor P A Farndon respectively and their staff.


 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
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