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Patient and Client Council Northern Ireland - Seeking contacts for project on rare diseases PDF Print E-mail
Friday, 27 August 2010 22:19

Call from Rare Disease UK looking for patients living in Northern Ireland. 

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New BBC One TV Show Needs You PDF Print E-mail
Thursday, 05 August 2010 08:42

Are you suspected of having Gorlin Syndrome but are awaiting medical diagnosis?

Last Updated on Thursday, 05 August 2010 09:11
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BBC Radio 5 - Tony Livesey Show, tonight at 11.35 pm PDF Print E-mail
Wednesday, 04 August 2010 17:15

BBC Radio 5 - Tony Livesey Show, tonight at 11.35 pm; could you talk about your experiences of taking a predictive genetic test?

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Join us at the Annual Patient Conference and AGM PDF Print E-mail
Tuesday, 20 July 2010 17:17

The event this year takes place on Saturday, 23rd October 2010 at the Novotel, Broad Street in Birmingham.

Last Updated on Wednesday, 21 July 2010 15:58
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NHS local. New Health Care Service in the West Midlands PDF Print E-mail
Wednesday, 14 July 2010 20:31

NHS local a groundbreaking new healthcare service for people in the West Midlands region. NHS local is a digital service to engage staff, patients and the public in the West Midlands, has gone live.  A video description can be found at http://maverick.box.net/shared/4vdak7tb1q (password: Maverick123).

 

 

 

Last Updated on Thursday, 15 July 2010 09:05
 
Long Term Conditions Alliance Scotland - Self Management Survey PDF Print E-mail
Friday, 02 July 2010 12:07

In response to a recommendation in the Self Management Strategy for Scotland, jointly published by LTCAS (Long Term Conditions Alliance Scotland) and the Scottish Government, LTCAS are currently developing plans for a campaign to raise publiic awareness of self management.

Last Updated on Friday, 02 July 2010 12:18
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Long Term Conditions Alliance Scotland hoping to influence poitical parties' 2011 Scottish Parliament Election Manifestos PDF Print E-mail
Friday, 02 July 2010 11:50

The political parties in Scotland have begun to develop their manifestos for next year's Scottish Parliament elections. 

Last Updated on Thursday, 15 July 2010 09:07
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Expectations - At Edinburgh Fringe PDF Print E-mail
Friday, 02 July 2010 11:07

UNIQUE - the support group for rare chromosome conditions, (members of the Genetics Alliance UK - previously Genetics Interest Group) has advised us about an exciting new play that is based on the experiences of having a child with a unique condition called Expections which is coming to the Edinburgh Fringe Festival this year.

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Act to save threatened services in the NHS PDF Print E-mail
Friday, 04 June 2010 22:34

Follow the link below for an update relating to the new ministerial team supporting Andrew Lansley, Secretary of State for Health:

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  Written and produced by Professor P A Farndon, Clinical Geneticist, Jim Costello (deceased) & Margaret Costello, unless otherwise stated.

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