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1   Link   BCCNS Life Support Network
Support Group based in the US for those people affected by Gorlin Syndrome
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2   Link   Australian Gorlin Syndrome Support Group
New resource for Gorlin Syndrome patients in Australia.
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3   Link   Brain Tumour UK
BTUK was founded in 1997, the charity has an impressive track record of providing practical and emotional support to brain tumour patients and their families and has a national network of grassroots supporters
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4   Link   Changing Faces
UK charity that supports and represents people who have disfigurements of the face or body from any cause.
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5   Link   CLAPA
National Charity in the UK dedicated to supporting all those affected by cleft lip and/or palate.
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6   Link   Patients Assocation
The Patients Association is a national healthcare charity and is nearly 50 years old. They exist to help any patient in the United Kingdom with advice and information on how to get the best out of healthcare.
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7   Link   Counselling Directory
The Counselling Directory provides the UK with a huge counselling support network, enabling those in distress to find a counsellor close to them and appropriate for their needs. This is a free, confidential service that will hopefully encourage those in distress to seek help.
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8   Link   Let's Face It
Support network for the facially disfigured to enable them to share their experiences and support and help one another by passing on information and advice on ways to cope with individual problems.
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9   Link   Macmillan Cancer Support
Psychological counselling is not commonly offered on diagnosis or even later on. Practical, medical, emotional and financial support is available. You can also speak to your GP or Consultant.
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10   Link   Rarer Cancers Forum
Website offering dvice and information to individuals with rare and less common cancers or to their families and friends.
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11   Link   Skcin
The Skcin Website offers vital information about Skin Cancer. Written by medical professionals specialising in all areas of skin cancer including detection, prevention, surgery and cure, this site offers a comprehensive one-stop interactive information point.
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12   Link   Unique Rare Chromosone Disorder Support Group
UK based charity offering information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them.
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  Written and produced by Professor P A Farndon, Clinical Geneticist, Jim Costello (deceased) & Margaret Costello, unless otherwise stated.

The Gorlin Syndrome Group is a Registered Charity - No 1096361

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