Home Web Links National / European Alliances - Health
Web Links
Display # 
# Web Link Hits
1   Link   Genetics Alliance UK
A national alliance of patient support groups for all those affected by genetic conditions. Useful source of information, expertise and support for all.
269
2   Link   National Voices
(Previously Long Term Conditions Alliance) is the new umbrella organisation established by and for the voluntary sector. It brings together all national voluntary organisations representing users of health and social care to give them a stronger voice in policy-making.
359
3   Link   Rare Disease UK
A national UK alliance of patients, doctors, specialist researchers, health care planners, politicians and industry in pursuit of the shared goal of high qauality healthcare for paitents and families living with rare disease.
373
4   Link   Skin Care Campaign
An umbrella organisation representing the interests of all people with skin diseases in England.
293
5   Link   Long Term Conditions Alliance Scotland
LTCAS vision is for a Scotland where people with long term conditions enjoy, not endure, full and positive lives - lives free from discrimination and supported by high quality services.
253
6   Link   European Union Committee of Experts on Rare Diseases
164
7   Link   EU Public Health
Link to EU Public Health rare disease section
331
8   Link   Skin Care Campaign Scotland
Campaigning for improved health care services for all affected by skin conditions
104

  Written and produced by Professor P A Farndon, Clinical Geneticist, Jim Costello (deceased) & Margaret Costello, unless otherwise stated.

The Gorlin Syndrome Group is a Registered Charity - No 1096361

© Gorlin Syndrome Group