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Frequently Asked Questions
Written and produced by Professor P A Farndon, Clinical Geneticist, Jim Costello (deceased) & Margaret Costello, unless otherwise stated. The Gorlin Syndrome Group is a Registered Charity - No 1096361
© Gorlin Syndrome Group |
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| Patients Know Best |
Patients Know Best is a website that allows patients to have full access to their medical records while maintaining the records confidentiality. It also allows patients to interact with their doctors through the site. This not only cuts down on the amount of time needed to visit doctors but also allows all specialists involved access to all the patients records. |