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Gorlin Syndrome Group

Supporting patients, their families and carers
 
Registered Charity No: 1096361
Supporting patients, their families, friends and carers affected by Gorlin Syndrome
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Research and Surveys
This are of the website gives details of projects we have been involved in.  There are also links to other areas of research relevant to Gorlin Syndrome.
 
 
The Gorlin Syndrome Group is committed to the promotion of research into the causes, effects, treatment and management of Gorlin Syndrome and to disseminate the useful results.  All requests for participation in research and surveys will be guided by the Gorlin Syndrome Group Research Policy.  
 
Clinical Trial in United States
 
We have recently been alerted to a clinical trial which is now at second phase.  For further information on the trial click here
 
Changing Faces Survey
 
Changing Faces are currently looking for people to participate  in their national survey.  Further details are available on the Changing Faces Page
 
Written and produced by Professor P A Farndon, Clinical Geneticist at the National Genetics Education and Development Centre UK, Jim Costello (deceased) & Margaret Costello, unless otherwise stated.