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Gorlin Syndrome Group

Supporting patients, their families and carers
 
Registered Charity No: 1096361
Supporting patients, their families, friends and carers affected by Gorlin Syndrome
Home      Treatment      NiCE Guidance - Skin Tumours
 
NICE Guidance
 
Improving Outcomes for People with Skin Tumours including Melanoma
Information for people with skin tumours, their families and carers, and the public.

The NICE clinical guidelines on skin tumours outlines how healthcare services for people with skin tumours should be organised. The guidelines were published in February 2006 and state 'Protocols should cover the management of care for people in high risk or special groups'.

It is worth noting that the guidance also stipulates that certain types of treatment may also be needed by patients who are at greater risk from skin cancer because of their genetic make up. Gorlin Syndrome patients are included as a special group within the guidance.

Despite the existence of the guidance many people affected by Gorlin Syndrome still experience lengthy delays or cancellations when accessing treatment for basal cell carcinomas.

The document available below gives a summary of the guidance and key recommendations; for the management and treatment of skin cancer. The information will enable patients to discuss the timeliness of treatment for basal cell carcinomas with their healthcare professional.

Click on document link:NICE Guidance for the public


 
 
 
 
Written and produced by Professor P A Farndon, Clinical Geneticist at the National Genetics Education and Development Centre UK, Jim Costello (deceased) & Margaret Costello, unless otherwise stated.