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Gorlin Syndrome Group

Supporting patients, their families and carers
 
Registered Charity No: 1096361
Supporting patients, their families, friends and carers affected by Gorlin Syndrome
Home      Guidance & Support      Heatlh & Well Being
Health and Well Being
  

This area of the website
provides information and links about the various sources of additional information and support available



Practical, medical, emotional and financial support
is available from Macmillan Cancer Support via the website or by telephone 0808 808 2020.

NHS Choices has a wealth of information about health, well being, availability of dentists, doctors and treatments available in your area.

There is also a useful section on Living with a long term condition which gives information about what you can expect in terms of your healthcare and care plans.


If you require further information on any aspect of your condition and are unable to find it on our website.

Visit the Contact Us page and submit your query. Alternatively we can be contacted on 01772 496849. If no one is available leave your name and telephone number and we will get back to you.


We are here to assist in any way we can.  If we don't have the answers we will do our best to find out.

 



Psychological help
Counselling
is not commonly offered on diagnosis or even later on.
 
If you feel that you need extra help in coming to terms with Gorlin Syndrome or any other aspect of your life, don't be afraid to ask for this via your GP or Consultant.
.

Carers
can access information and details of support networks on the following page:
 
Carers




Other sources of help
Access the following pages
for further information and links to other sources of support
 
Babies and Children
Benefits & Finance
Care in the sun


 
 



 


 
 
 
 
Written and produced by Professor P A Farndon, Clinical Geneticist at the National Genetics Education and Development Centre UK, Jim Costello (deceased) & Margaret Costello, unless otherwise stated.