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Gorlin Syndrome Group

Supporting patients, their families and carers
 
Registered Charity No: 1096361
Supporting patients, their families, friends and carers affected by Gorlin Syndrome
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Tuesday 06/Jan/2009 19:54:28 CST
Thank you for visiting my site. Here you can leave your comments.
Total Records:7
Viewed Per Page:20
Name Comments
7 Toni
Location: Bristol
IP: 77.99.34.205

Saturday 13/Dec/2008 02:34:03 CST
6(^)6 Wow what an easy site to look round. Brilliant. As ever you've got all the info covered.

Well done on all the hard work. Especially loved the site regarding skin camouflage as I am embarking on teenage daughter wanting some help in this area.
6 Dr. Weiss
Location: NY City
IP: 64.3.175.226

Wednesday 19/Nov/2008 08:01:26 CST
I am the research fellow at Laser & Skin Surgery Center of New York. We are currently enrolling and treating patients with Basal Cell Carcinomas on the trunk or extremities in a study with a new non-surgical treatment option. The research study involves intralesional injection of Aminolevulinic acid into the BCC followed by exposure to blue light. The treatment is free. If in NY area and interested, please contact research department at 212-686-7306 for more information. Thanks.
5 karen
Location: North East
IP: 217.23.229.194

Friday 14/Nov/2008 05:59:05 CST
:-D My boyfriend is 51 and has Gorlins Syndrome this webb site is very helpful and well thought out.
4 Jane Costello
IP: 81.155.46.2

Friday 14/Nov/2008 02:27:40 CST
Well done on the new website mum! It must have taken a lot of time and effort. It's coooooooooool...just like you. Love you. 6(^)6
3 Diane
Location: warrington
IP: 78.105.137.26

Wednesday 12/Nov/2008 01:05:44 CST
A easy web site to look round alot easier then the old one.Well done to all involved. 6(^)6
2 Sally
Location: manchester
IP: 78.148.65.63

Monday 10/Nov/2008 11:32:46 CST
Many thanks Margaret for your skill,expertese and patience to produce an excellent resource.Am sure as i many will find the content and the links invaluable.Sally :-D
1 Margaret Costello
Location: Preston, Lancashire, UK
IP: 90.211.122.166

Monday 10/Nov/2008 11:23:20 CST
Thought I would be the first to 'start the ball rolling'. Hope you like the look of the new website. Watch out for the interactive area coming soon. Best wishes to all. 6(^)6

 

Thank you for visiting.  Best wishes.
Written and produced by Professor P A Farndon, Clinical Geneticist at the National Genetics Education and Development Centre UK, Jim Costello (deceased) & Margaret Costello, unless otherwise stated.