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Carers
Are you caring for a child, parent, partner or
friend with Gorlin Syndrome? Are there times you feel you need
additional support? Listed below are organisations dedicated to offering support services to carers across the UK.
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The Princess Royal Trust for Carers is
the largest provider of comprehensive carers support services in the UK. In
addition to influencing national, regional and local policy they are providers
of advice for carers and support groups.
www.carers.org
www.youngcarers.org
Both sites include all the key topics and
articles about caring, which in turn signpost you to the best information
available on the internet.
The draft NHS Constitution was published
at the beginning of July 2008 for consultation alongside a 10 year plan for the
NHS.
For the first time
in a key NHS document, the Constitution gives carers prominence as partners
in care. The Princess Royal Trust for Carers "Welcome this as the beginning
of a culture change in the NHS towards valuing the extraordinary caring
contribution of ordinary people. It builds on the NHS commitments to carers,
including £150m new money for health trusts, set out in
the new ten year National Carers Strategy".
The briefing dated June 2008 can be accessed by clicking here.
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Contact Us if you need advice or information about any aspect of Gorlin Syndrome, treatment and/or care.
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