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Gorlin Syndrome Group

Supporting patients, their families and carers
 
Registered Charity No: 1096361
Supporting patients, their families, friends and carers affected by Gorlin Syndrome
Home      Guidance & Support      Care in the sun

 

 
Care in the sun
 
Sun damage can cause premature aging, wrinkles and skin cancer.

Sunlight may be one of the environmental agents promoting the appearance of BCCs in Gorlin Syndrome.




It is strongly recommended that patients
stay in the shade whilst the sun at its highest, usually between 11 am and 3 pm.

wear wide brimmed hats and protective clothing (long sleeved, high density cool shirts or blouses)

wear 100% UV protective sunglasses as the skin surrounding the eyes. Make sure that your sunglasses carry quality marks such as BS Kite and CE marks. These will guarantee that your sunglasses are giving you a high level of protection against UBV and UBA rays of the sun.

use sun-block or high factor sunscreen. The higher the number the better the protection. Look at the label and ensure that the product protects from UVA and UVB and that it carries a 4 star rating. 

 




Babies and children
Remember
The skin of babies and children is delicate and parents should be aware of the extra dangers and know how to protect their children against the sun's harmful rays. It is vital that children are taught safe sun habits whilst they are young in order to reduce the risk of developing skin cancer in later years.

it is possible for skin to burn on a cloudy day





Suncare products
Recommendations
The following products are recommended by UK skin specialists. They are advanced and offer high sun protection.  
 

Protective clothing
A large number of retailers now offer sun protective clothing for children and adults. Check out:
 


 
Other products and accessories - a larger head size in Gorlin Syndrome sometimes makes it difficut to purchase head wear. Check out the sites below.
Hats for a special occasion. For hire or purchase. Visit the on-line store which gives full details of showrooms across the country. 
Max Caps. View a wide variety of larger size hats for men, women and children.
Riding hats. A wide range of riding hats in all sizes giving full protection when horse riding.
Surburban Turban specialises in turbans and hats for women experiencing significant hair loss - alopecia, chemo hair loss, psoriasis, lupus or any medical condition that has hair loss symptoms.


 


 
 







 



 
 
Written and produced by Professor P A Farndon, Clinical Geneticist at the National Genetics Education and Development Centre UK, Jim Costello (deceased) & Margaret Costello, unless otherwise stated.