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Gorlin Syndrome Group

Supporting patients, their families and carers
 
Registered Charity No: 1096361
Supporting patients, their families, friends and carers affected by Gorlin Syndrome
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Welcome to the Gorlin Syndrome Group




We are a patient group and support network
offering guidance, advice and information to patients, their families and carers whose lives are touched by Gorlin Syndrome.  


		
























































Our Aims and Objectives




To offer guidance, advice and
	information to those affected by Gorlin Syndrome.










The advancement of the education of
	the medical profession into Gorlin Syndrome and its implications for the
	family.










Promote research into the causes,
	effects, treatment and management of Gorlin Syndrome.
















































Gorlin Syndrome Group






The Group


is organised by patients
affected by Gorlin Syndrome (Nevoid Basal Cell Carcinoma Syndrome) and their
families, with support from a team of medical advisors. 

 








Medical Advisors


we continue to be grateful for the continuing support of our medical advisors 


























 





















Although based in the UK we currently support patients, their families and carers in many countries across the world.  We are able to offer information and advice about the many aspects of Gorlin Syndrome.  


We also anticipate that the
information contained within the website will
also be a valuable resource to healthcare professionals.


 


If you don't find what you are looking on the website, please do not hesitate to get in touch via the Contact Us page on the left. 




























 














													
													

	
																	
												

											
								
												
									

									
									

										
									

									
									
									

										

Written and produced by Professor P A Farndon, Clinical
Geneticist at the National Genetics Education and Development Centre UK, Jim
Costello (deceased) & Margaret Costello, unless otherwise stated.